Out of sight, out of mind


PAPUA New Guineans with the AIDS virus are being dumped outside the Angau Memorial Hospital Day Care Centre. And the Morobe Provincial AIDS Council chairman says this is happening because nobody is providing care, treatment or support. We are convinced that Dr Rendi Moke is correct in his assessment.

It is very much easier to invest money, expertise and community support in attempts to stop people acquiring AIDS than it is to deal with their skeletal bodies, their incontinence, their mental delusions and the agony of a slow and certain death.

There is nothing nice about dying of AIDS. It isn’t the kind of disease where patients die with dignity, cushioned with pillows and surrounded by anguished relatives and friends. It is a harrowing death.

In our country it’s a death often punctuated with terrible fits of coughing, lumps of sputum, vomiting and fever, and endlessly soiled laplaps and sleeping mats.

The dying person may be little more than a skeleton, with bones prodding at the too-taut skin.
Or perhaps the victim is a child, eyes too big for the wasted face, a body defined by elbows and knees.

How can the victim understand the fate that is overwhelming it? And why will nobody meet that child’s uncomprehending glance, that gaze devoid of guilt or guile? Because “no-one is providing care, treatment and support”. Most of us have washed our hands of AIDS victims.

We will willingly attend meetings addressed by experts who tell us a thousand ways in which we can help carry the anti-AIDS message to our communities, and protect our own families.

We will speak out, address meetings, make our support public, and show our dedication and commitment to the prevention of this disease. But we will not sit by the hour beside the young woman who repeatedly drenches herself in her own urine.

We will not even go to the village where she lies, if she is fortunate enough to have relatives who will accept her on sufferance.

We will not lift a finger to assist the young AIDS victim who has been deliberately burned and tortured, who has been denied food and water, and who has been thrown into the haus pik at the end of the village, the better to die. In fact, we will not tolerate even the sense of their presence in our environment.

Far better, we tell ourselves, to dump them outside a hospital day care centre – after all, that’s the medical officers job, that’s what they’re paid to do, and they should know how to handle these people.

And of course, we tell ourselves, these days there’s medicine for AIDS, so it isn’t as bad as it used to be back at the beginning of this sickness.

That’s the kind of cocoon of comfortable misinformation that makes murderers of us all, for we willingly accept that which is part truth, preferring the comfort of its false re-assurance, rather than the bleak realities that we will do everything within our power to ignore, to avoid, and to flee from.

There is no AIDS orphanage in PNG. But there are dozens of known AIDS orphans, and many more unidentified within our urban centres and our rural villages.

Month after month, and now year after year, Tessie Soi and the Friends organisation gathers the pathetic little bodies from the morgue, creates coffins for them, and buries them un-mourned and unwanted at the capital’s 9 Mile cemetery.

Yes, there are some AIDS drop-in centres in our country. But many of those centres are under-utilised, monuments to well-meaning churches and community groups, a nervous and impersonal out-reach to a grim problem.

They’re not used much because AIDS victims don’t even know of their existence. They know nothing of
the services and contacts and very real comfort they can provide.

The communication links that should place them among the best-known public contacts in town simply don’t exist. And at the other end of the scale, there are no purpose-built, professionally staffed AIDS wards in any of our hospitals.

The message to the AIDS sufferer is crystal clear.
Please go away – and die.

Brian Haill
President,
The Australian AIDS Fund Inc.,
PO Box 1347,
Frankston, VIC, 3199
Australia
Email: bhaill@bigpond.net.au

 

 

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